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Crohn’s & Colitis Canada

Crohn’s and Colitis Canada is a leading national charity dedicated to finding cures and improving the lives of those with IBD. 

Expertise
Health
Reputation Management
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Creative strategy
Earned media, influencer relations and partnerships  
Strategic Counsel

Challenge

The Locked Out campaign faced several challenges to raise awareness for IBD and public washroom accessibility. The activation — a real portable toilet placed in a public space — often led to preconceived assumptions, mirroring the stigma those with IBD face when seeking washrooms. This reinforced the need for targeted engagement to shift perceptions. 

Stigma remains a barrier, as understanding of IBD, its symptoms and patient experiences are often overlooked. Positioning the stunt within Crohn’s and Colitis Awareness Month and sharing educational information was essential to breaking down misconceptions. The campaign relied on knowledgeable event staff to effectively communicate the message, which was supported by QR codes, signage, and live app demonstrations to ensure accessibility and education. 

Engaging passers-by required adaptable strategies to capture attention and encourage participation. Crohn’s and Colitis Canada’s network of advocates played a key role in staffing the event, providing credible voices to reinforce the campaign’s message.  Maximizing visibility required a strategic mix of organic and paid social content, ensuring reach beyond the physical activation. Targeted media outreach focused on Toronto to optimize resources and drive coverage, reinforcing the campaign’s urgency and impact. 

Insight

To effectively engage key stakeholders and promote the GoHere® app during Crohn’s and Colitis Awareness Month, we analyzed and applied existing research on the needs and challenges of those who live with IBD. It was important to understand disease prevalence and patient experiences to ensure our program resonated with audiences. We examined insights into public washroom access barriers, stigma, and the need for real-time solutions, ensuring our messaging addressed the most pressing concerns. We also leveraged Vividata research to deepen our understanding of audience behaviors and media consumption patterns. These insights guided our strategic approach, enabling us to craft compelling content, target key demographics, and maximize engagement across multiple channels. 

IBD Patients

IBD diagnosis rates in Canada are increasing – and so are the needs for support. There is no cure for IBD. Approximately 322,000 Canadians live with IBD, with new diagnoses every 48 minutes. Patients experience lifestyle impacts, including chronic abdominal pain, frequent bathroom visits, and fatigue.1 Addressing IBD requires a thoughtful, sensitive, and real approach to the stigma that patients experience. Our strategy balanced empathy with practical solutions to drive engagement and app downloads. 

Additional research findings: IBD often develops in young adults, typically between 16 and 35 years old, but can occur at any age. A second peak may occur in individuals over 60. Both men and women are equally affected.1 Patients experience significant lifestyle and psychosocial impacts such as mental health, diet and nutrition, and work and social life; Psychiatric disorders frequently occur among those with IBD: An estimated 21% have clinical anxiety; and an estimated 15% have clinical depression.2 

News and social media consumption habits: Mobile (hours per week)3: Gen Z: 16.8; Millennial: 10.1; Gen X: 12.8; Social applications (hours per week)3: Gen Z: 15.8; Millennial: 15.1; Gen X: 8.2; TV (hours per week)3: Gen Z: 14.4; Millennial: 17.5; Gen X: 16.5; Online (hours per week)3: Gen Z: 28.7; Millennial: 25.6; Gen X: 24.7. 

IBD Caregivers

Those who care for individuals who live with IBD, usually family members, close friends or partners of those diagnosed. Research revealed that 56 per cent of caregivers feel exhausted from caregiving duties, and 44% report anxiety.4 Women are more likely to take on the caregiver role for children with IBD.5 IBD caregivers in Canada are essential to the well-being of individuals living with the condition. We needed to show support for the care they provide and make them aware of the GoHere® app to increase downloads and usage.

Policymakers: Those who shape public policy and address issues through legislation and decision-making. For non-profit organizations, this audience can influence resources, support advocacy efforts and shape the broader environment in which Crohn’s and Colitis Canada operates. Engagement with policymakers was essential to raise awareness and garner support for washroom accessibility initiatives in a sensitive way to make it easy for this audience to share our messages. We needed a demonstration of local political support to increase awareness and action.  

News Media and Social Media: We targeted top-tier health reporters, online news outlets, and Crohn’s and Colitis Canada’s active social platforms (FB & IG) to reach key audiences. Insights showed that Gen Z, Millennials, and Gen X spend significant time on mobile and social media, making a shareable, timely event essential. Personal patient stories highlighted the GoHere® app’s impact, driving awareness and downloads. Securing a national health reporter with a personal connection to IBD further amplified engagement within the IBD community.  

Environmental Scan: To understand the IBD landscape, we reviewed media coverage and patient testimonials. Results showed IBD awareness remains low, and the stigma surrounding the disease often prevents open conversations. Public washroom accessibility and reduced stigma emerged as a critical need for IBD patients.  

Approach

To reduce stigma, we had to find a way to visualize the realities of washroom access needs for those who live with IBD. To achieve this, we produced a powerful visual centerpiece – an ‘out-of-order’ portable toilet – representing the challenges faced by individuals with Crohn’s or colitis in accessing public washrooms quickly. Through earned and social media, this activation sparked conversation and action on the GoHere® app during Crohn’s and Colitis Awareness Month. 

The campaign featured a high-impact public activation and a multi-channel communication strategy: 

Call-to-Action: Event materials, earned and social media materials, and conversations encouraged attendees to scan the QR code and download the GoHere® app. 

Event Execution: On November 26, 2024, we installed an ‘out-of-order’ portable toilet near Toronto’s Union Station to highlight the urgent need for accessible washrooms. Crohn’s and Colitis Canada staff and volunteers engaged the public with creative materials and a QR code for easy GoHere® app downloads. 

Media Engagement: To broaden education beyond the event, we needed national media coverage for our story. This involved securing a nationally syndicated feature story, booking interviews for patient advocates and Crohn’s and Colitis Canada spokespeople, and sharing event photos with media outlets to provide audiences with the powerful visual to include in their stories.   

Social Media Strategy: Organic and paid social media posts leveraged hashtags and influencer partnerships, and visual content from the event captured attention and drove app downloads.  

Policymaker engagement: To amplify event support and impact, we engaged local MPs and MPPs to demonstrate their support. Mary-Margaret McMahon, MPP for Beaches-East York and Toronto City Councillor, Paul Ainslie, Scarborough-Guildwood, attended the event, shared on their social channels and encouraged GoHere® app downloads. This demonstration of local political support allowed for increased awareness and actionable items for local communities to consider.  

Call-to-Action: Event materials, earned and social media materials, and conversations encouraged attendees to scan the QR code and download the GoHere® app.

Results

  • Over 28.3 million total audience reach through earned and social media tactics  
  • 131 stories published by news outlets 
  • Over 9,000 social media engagements (comments, likes and shares) 
  • Seven campaign spokespeople and patient advocates interviewed 
  • One national feature 
  • Seven interviews facilitated 
  • 100% of stories included GoHere® mentions 
  • 351% increase of daily GoHere® app downloads from November to December 2024, compared to app creation, November 2015 to October 2024  
  • 2,221 GoHere® app downloads from November 26-27, 2024 
  • 55,136 total GoHere® app downloads from launch of app until December 31, 2024 
  • 62x increase in daily average number of GoHere® downloads on November 26 and November 27, 2024, compared to January-October, 2024.  
  • 17x increase in average app usage on November 26 and 27, 2024 
  • 15x increase in webpage visits to CCC GoHere® site on November 26 and 27 
  • One MPP and one Toronto City Councillor attended the event and amplified our content by sharing it on their personal social media channels

References

  1. Crohn’s and Colitis Canada. (2023). Impact of IBD in Canada Report – Resources and publications – Crohn’s and Colitis Canada. https://crohnsandcolitis.ca/About-Us/Resources-Publications/Impact-of-IBD-Report​ 
  2. Dmagnus. (2024, July 8). The state of Caregiving in Canada. CareMakers. https://caremakers.ca/uncategorized-en/the-state-of-caregiving-in-canada/#:~:text=Being%20a%20family%20caregiver%20can,experience%20these%20emotions%20than%20men 
  3. Targownik LE, Bollegala N, Huang VW, et al. The 2023 Impact of Inflammatory Bowel Disease in Canada: The influence of sex and gender on Canadians living with inflammatory bowel disease. Journal of the Canadian Association of Gastroenterology 2023;6(Suppl 2):S55–S63. https://doi.org/10.1093/jcag/gwad011.​ 
  4. VIVIDATA SCC (2024). Study of the Canadian Consumer Digital Fall. Retrieved from https://vividata.ca/ 

Major projects run on public confidence, not just public funding  

Published: Calgary Herald April 7, 2026 

Canada is entering a defining era of federal major projects that will shape our economy and our global competitiveness for decades. Prime Minister Mark Carney’s major project announcements signal an ambition to accelerate nation-building infrastructure.  

The opportunity is as enormous as the responsibility. These projects will not succeed on capital alone. They will succeed only if citizens are meaningfully engaged in the decisions that determine what gets built, where, and how.  

Too often public engagement is treated like a box to tick after the route is picked, the budget is set, and the press release is drafted. That approach is outdated and expensive. It slows shovels, inflames conflict, ignores Indigenous Title and Rights and turns significant projects into symbols of mistrust.  

There’s a misconception that engagement slows things down. Major projects operate at the speed of trust. Done early, it recognizes rights, helps surface concerns, hopes and opportunities before they harden into opposition.  

Consider the projects that dominate the Canadian imagination and investor spreadsheets. LNG in B.C. is framed as an export opportunity and geopolitical tool, particularly as allies seek reliable energy supply. High-speed rail, new transmission, nuclear projects, and carbon capture are pitched as the infrastructure of productivity and resilience. These projects can face community opposition as they touch identity, jurisdiction, and intergenerational risk.  

Early and thoughtful public engagement can be the difference between lasting trust and mere compliance. Compliance is brittle and can be obtained by rushing a timeline or narrowing a comment period. Consent stands the test of time. It is earned through co-development and co-design with rights holders and through early conversations that shape decisions. When engagement happens early, it reveals local knowledge that improves design, reduces environmental risk, and prevents avoidable cost overruns. When it happens downstream, it becomes a referendum on trust.  

We do not have to speculate about what happens when governments get ahead of their public. Ontario recently floated the idea of changing month-to-month “evergreen” leases, triggering swift backlash from tenants and housing advocates. Within days, the Province called off the proposed consultations. That is what a hurried signal looks like in the real world: confusion first, outrage second, retreat third. The policy may not be a megaproject but the lesson is relatable. Decisions that land as surprises invite opposition that becomes a schedule, cost, and reputation problem.  

Now raise the stakes to a proposed major project within Indigenous territories. Here, engagement is not only best practice but a constitutional reality. Nations are rights holders with their own governments, laws, and priorities. Projects that treat Indigenous engagement as a risk-mitigation tactic miss the biggest opportunity on the table: shared decision making and prosperity built through equity participation, procurement pathways, training pipelines, and stewardship models that reflect Indigenous knowledge and authority. Done well, this is reconciliation you can measure: jobs created, revenues shared, language and culture supported, and ecological outcomes strengthened.  

From racialized Canadians to newcomers to people with disabilities, low-income communities, and beyond, engagement insights can reveal practical barriers and unintended consequences of a project. 

Carney’s bold agenda matched by billions in investments presents an opportunity. Canada can build fast and engage meaningfully at the same time. 

The International Association for Public Participation is refining its global guidelines for public engagement. The goal is clearer, faster decision-making and projects rooted in the voices of the people most affected. 

Engage early. Agree on a shared vision. Share information clearly. Put real options on the table. Fund participation so communities are not asked to volunteer their capacity. Respect Indigenous title and rights. Then communicate with humility because Canadians can tell the difference between information and persuasion.  

That is how we turn major projects into collective national achievements.  

About the author
Lori DeLuca / Engagement & Communications Director  
Lori DeLuca is a Calgary-based engagement and communications director with ChangeMakers. She brings more than 20 years of experience helping organizations achieve their goals. She excels at developing and executing strategies that build trust, advance equity, and deliver measurable impact. Her award-winning work has secured multi-million-dollar funding, shaped policy and strengthened organizational reputation across public, private and non-profit sectors, including infrastructure, policing, economic development and aviation. Recognized for her political acuity and steady leadership, Lori skillfully navigates complex, sensitive environments with confidence by building strong relationships and applying creative, inclusive solutions to high-stakes challenges.

Resource Development: Data Speaks, but Trust Decides

We are communications and public engagement professionals, but our perspectives were shaped in forests, fields, laboratories, and community halls across Canada. What we have come to appreciate, through many projects and conversations and often the hard way, is that data, on its own, is not enough to move resource development priorities forward. 

Across a combined 30+ years working in forestry, mining, fisheries, energy, agriculture, and other resource sectors, we have seen firsthand how outcomes are shaped not just by data and evidence, but by relationships. Again and again, we have found ourselves grappling with the same question: how do we build understanding, trust, and that ever-elusive social licence in increasingly complex public arenas? 

Public interest in resource decision making is very high, particularly as Canada confronts the need to drive economic growth, strengthen competitiveness, and achieve long-term resource self-sufficiency. At the same time, the narratives surrounding natural resource decision making are increasingly fragmented and polarized. Information now travels faster, through more channels, and is interpreted through deeply personal lenses. Context and nuance can easily be lost, and people are as likely to trust family and friends as much as scientists, industry leaders, or their own government officials. 

This is not simply a communications challenge. It reflects a shift in how trust is earned and sustained. Project proponents, decision-makers and experts need to show up differently if they want to be heard.

Information does not equal inspiration  

More data alone will rarely deepen understanding or achieve broader support. People change their perspectives, and even their behaviour, when they feel personally connected to an issue. Effective engagement moves beyond transmitting data to helping people see themselves in the opportunity, the trade-offs, and the outcomes. 

Intersection of knowledge systems

Western science has greatly influenced the ways in which information is framed, communicated and consumed by the general public in the natural resources sector. Western scientific approaches provide empirical and analytical frameworks, but they only represent one epistemological lens. Indigenous knowledge systems articulate complex, relational and longitudinal understandings of land that are grounded in generations of lived experience and intergenerational transmission.  

Sharing teachings and insights from these knowledge systems not only fosters more balanced and holistic perspectives in the dissemination of information, but we have also witnessed how the intersection of this data actively recognizes and affirms voices, histories and ongoing contributions of Indigenous peoples.  

Distinguish rights holders from interest groups 

The term “stakeholder” has long functioned as a convenient catch-all for target audiences for relationship building. Today it is recognized as inadequate and antiquated. Rooted in the action of staking a claim, it carries colonial assumptions that diminish important distinctions. By acknowledging colonial harms and moving away from one-size-fits-all terminology, we can better reflect the realities of those impacted by decision-making processes. 

Treating all voices as interchangeable obscures meaningful differences in rights, responsibilities, and relationships to land and resources. Through our actions, language, and intention-setting, we have seen the benefits of instead making these distinctions visible and honouring the distinct roles and responsibilities that different parties bring to the table. 

While many interests deserve to be heard, Indigenous Nations are not simply another interested party. They are rights holders, with distinct rights and place-based relationships to land. Meaningful engagement and effective relationships-building begins with recognizing and acting on this distinction. 

Co-creation is the most powerful social licence strategy 

When people are meaningfully involved early, trust grows, even when final decisions are imperfect or contested. Co-creation goes beyond consultation or participation for its own sake. At its best, it is about identifying shared interests, surfacing local knowledge, and shaping outcomes that deliver mutual value. Across sectors, we have seen that co-created approaches reduce conflict, improve project design, and lead to decisions that are more resilient over time. While co-creation means earlier and greater investments in engagement and communications, the positive results are undeniable. When communities, rights holders, and proponents can see how their priorities are reflected in outcomes, co-creation builds the shared ownership that long-term stewardship and effective resource development require. 

Engagement excellence is essential leadership practice 

Resource development has always been technically complex. Increasingly, it is relationally complex as well. Leaders who communicate openly, involve communities early, and are transparent about uncertainty are better positioned to navigate emerging issues and make durable decisions. 

Building and sustaining trust requires more than communication. It requires listening, learning, and a willingness to evolve. While data remains foundational to responsible resource development, long-term success depends equally on the strength of the relationships built around it and a more holistic view of the knowledge that informs the work.   

About the authors
Chrystiane Mallaley / Senior Vice President, Social Impact Consulting 
Chrystiane is an innovative, award-winning strategic communications and engagement practitioner. She partners with governments, communities, and business leaders to translate technical complexity into narratives that foster understanding, meaningful engagement, and trust in projects critical to Canada’s economy. She is honoured to live on the unceded territory of the Anishinabe Algonquin Nation, in what is now known as Ottawa.
Micki Baydack / Director, Engagement
Micki Baydack is an experienced community development and engagement practitioner. She works with governments, Indigenous Nations, non-profits, industry, and the public to advance complex, multi-phase initiatives through collaborative and holistic approaches. Micki brings a strong foundation in natural sciences, risk, and community resilience, supporting thoughtful, informed engagement that values both knowledge sharing and co-learning. Micki is honoured to live, work and play in Treaty 6 territory on the traditional lands of the Cree, Nakota Sioux, Anishinaabe, Dene, Blackfoot and home lands of the Métis peoples.  

The State of PR in Canada: ethics and strategy still needed at the table  

These days, it is easy to focus on what is new. In fact, it can seem impossible to keep up. But the 2025 State of Public Relations in Canada Report shows us that in all this change, the fundamentals: trust, ethics, and purpose, still matter. 

ChangeMakers supported this research initiative because it is deeply connected to what we do – helping organizations earn trust, build relationships and communicate with clarity. The report confirms what we hear from clients every day. People want honest, clear, and responsible communication. They trust organizations that truly listen and respond with relationships in mind. And they want professionals who understand both strategy and risk to help them move their goals forward. 

The three themes in the report stand out for us. Each is tied to the work we do and the outcomes we help deliver. 

First, trust is still fragile. 

Public trust in communications is improving, but not fast enough. The language we use to describe our work in the professional field makes a difference. Titles like “communications” and “public relations” are not interchangeable in the eyes of the public, and it affects credibility. Words matter. 

At ChangeMakers, we focus clear, honest communication. Whether we’re working with government, business or communities, we understand how to engage audiences, build relationships and earn trust. We believe reputation is earned through actions, not slogans. 

Second, AI is here. We need to lead. 

The report shows that while our professional field is looking at efficiencies in new AI tools, business leaders are not yet turning to their communications teams for guidance on AI strategy. That is a risk. If we stay focused on outputs, we will be left out of the bigger conversation. 

If harnessed correctly, AI can be much more than a tool bolted on to workflows. It can be a strategic driver that creates both new risks and new expectations. At ChangeMakers, we are responding by embedding AI into every facet of our business. The delivery of this looks different across our paradigm, but the result is consistent – higher rate of efficiency, better quality output, and getting to the solution quicker and more often. All of this is grounded in our unfettered belief in human expertise at the wheel. We believe this approach will both elevate our company and push the boundaries of what’s possible for the entire industry.  

Third, professional associations matter. 

Canadians want ethical oversight. They want standards they can trust across all disciplines in the work ChangeMakers does, from marketing, creative and digital to advertising, communications, change management, engagement and measurement. That is what professional associations, like the Canadian Public Relations Society, bring to the table. Professional associations are vital platforms for leadership and help keep the focus on what matters: relationships, ethics and public trust. 

ChangeMakers supported this research because our clients and their audiences are living these issues every day.  

Whether it is misinformation, shifting expectations, or AI uncertainty, we help our clients anticipate those challenges, navigate complexity, and create results that matter. This report confirms that our work is more important than ever. 

Let’s keep the conversation going.  

About the author
Stefan Moores / Chief Executive Officer
Stefan Moores is a business leader with expertise in professional services, management consulting, communications, and public affairs. With two decades of experience leading business transformation, including stewarding companies through mergers and acquisitions, Stefan approaches change as a growth opportunity for any company. He is based in Toronto, Ontario.  

Forget the Deliverables. Drive Business Outcomes. 

Across industries, transformation is constant. If you’re not evolving, you may be left behind. But the difference between success and failure isn’t simply who adapts fastest or the most. Those who will emerge as leaders in today’s business environment will be those who embrace and drive change best. 

That’s why communications teams can no longer afford to sit at the end of the decision chain to receive and act on a mandate—they must be present at the decision-making table, shoulder-to-shoulder with the C-suite. The communications function is capable of more than storytelling, media, and advertising if you allow it.  

At ChangeMakers, we demand it

Co-architect Business Strategies  

For too long, communications has been the messenger—not a co-architect—of business strategy. The result is often reactive campaigns, fragmented programs, or missed opportunities. 

We’ve entered an era that requires communicators to understand – and are given visibility into – the entirety of an organization and business context before executing on a task. Communications deliverables are a means to the end.  

To achieve business outcomes, communications must be at the core. Whether advising on organizational design, reputation risk, or stakeholder trust, engagement must be strategic, intentional, and continuous. Otherwise leaders will fail to build the trust required to execute successfully.  

That’s why our role at ChangeMakers extends beyond “telling the story” to building the systems and approaches that make stories credible. We’re helping set direction, identifying roadblocks, and supporting organizational changes to meet and exceed expectations. This requires effective integration—across disciplines, crafts, and technologies, both internally and externally.    

Leverage Communications as a Partner  

Immeasurable strength comes from integrating the entire communications landscape — from marketing and brand strategy to crisis management, organizational change, and social-impact advisory. Our excellence across this diverse skill set gives us an unmatched perspective that informs our approach to every business challenge.  

Communications can lead the next decade of organizational transformation. Doing so will require courage to collapse silos, to rethink traditional models, to show up in boardrooms armed not only with creative ideas, but with data, foresight, and strategic authority. 

For CEOs, boards, and senior leaders, strategic communications must be viewed as a key driver in every plan to achieve business outcomes. It’s the force multiplier — aligning people on the why, increasing adoption and execution, protecting reputation, and unlocking growth. Whether you’re introducing AI, repositioning a brand, driving rapid growth, responding to a crisis or reputational risk, or delivering social impact at scale, success depends on your ability to bring people with you – and communications is the catalyst for success. 

Use Technology and AI as a Catalyst 

People across every organization are using some form of AI – whether it’s endorsed or not. At its best, AI offers a promise of net new solutions, efficiency, cost reduction and automation. Executed inconsistently, it risks eroding trust and value among stakeholders that matter most.  

The most effective transformations pair data intelligence with human expertise — the ability to listen, interpret, give and take, and adjust. At ChangeMakers, we leverage technology to provide data and insight so our teams can focus on strategic counsel: shaping messages that move markets, align employees, or attract investors. 

AI is embedded in how we analyze sentiment, forecast risk, and measure impact. It helps us measure what was previously immeasurable. Our Reputation Score can quantify your reputation, analyze how competitors compare, predict reputational risk, and identify avenues for future growth.  

In another case, we’re going beyond talking with clients about how AI-powered tools like ChatGPT, Gemini, and Google’s AI Overviews change the way people find information. We’re proactively workshopping content strategies and messages that resonate across audiences and organizational contexts, and are structured so AI tools can find, understand, trust, and quote them. 

No one person can keep up with the pace of change set by AI and technology. It requires partnership with a trusted advisor who can help you set the path and filter what’s valuable amidst the noise. 

Learn How to Do Change Well 

The pace of change today—technological, societal, regulatory—can feel overwhelming. Change is hard. And can be exhausting. Especially when poorly managed. 

Organizations with strong change management deliver 264% more revenue growth than those that don’t. What does “strong change management” mean? Following a change management methodology is not enough. Leaders must leverage their strategic communications team to take organizational change beyond process and protocols to embed lasting shifts in culture, performance, and resilience that maximize success.  

When done well, change builds credibility and confidence. When done poorly, it destroys both. Strategic communications is the difference. 

At ChangeMakers, that’s our purpose and our promise: to help leaders and their organizations navigate complexity with clarity, integrity, and measurable results. 

You can’t stop change. But you can do it well. 

About the author
Stefan Moores / Chief Executive Officer
Stefan Moores is a business leader with expertise in professional services, management consulting, communications, and public affairs. With two decades of experience leading business transformation, including stewarding companies through mergers and acquisitions, Stefan approaches change as a growth opportunity for any company. He is based in Toronto, Ontario.  

Can AI Save our Hospitals?

The future of AI in healthcare will be shaped by leaders who see trust as the foundation of adoption. 

America’s hospitals are running out of time. Staffing shortages are closing clinics, emergency rooms are over capacity, and clinicians are leaving faster than new ones can be trained. Burnout, backlogs, and budget shortfalls are eroding the foundation of care. The system is strained and signaling the need for urgent change and decisive leadership. 

At the same time, artificial intelligence (AI) tools are advancing quickly, promising to automate documentation, predict risk, and personalize treatment. Hospitals stand to reclaim thousands of clinician hours each year, reduce administrative costs, and ease burnout, improving access and efficiency across the system.  

The American Medical Association has already warned that adoption could stall if hospitals fail to address clinician and patient concerns. Without thoughtful rollouts that build genuine trust, even the best technology may fall short, leaving significant investments with little real-world impact.

Hospital leaders can’t afford to miss — or mishandle — this moment. Smart organizational change management will determine whether we succeed with one of healthcare’s most transformative opportunities in a generation. 

Here are three strategies to launch AI transformations that deliver lasting impact: 

1. Build Buy-In: Start with the “Why”  

Before we ask patients and clinicians to adopt AI, we must answer why the change should matter to them. Talk about AI tools in terms of human outcomes that benefit the users, like more face-to-face time with providers and less burnout for clinician, rather than in business terms like “efficiency” or “innovation.”

For example: “We know how frustrating it can be when clinicians spend visits typing into a laptop instead of fully engaging with you. We envision a future where conversations are face-to-face, uninterrupted, and centered on your needs. That future is possible with the help of our new AI-powered documentation tool.”

Patients and healthcare professionals need to see that these technologies bring time back to them to help them achieve their goals. If healthcare leaders fail to demonstrate that purpose clearly and repeatedly, adoption will remain half-hearted.

Actions: Align the rollout of AI tools with end-users’ values and goals. Every staff meeting, town hall, and newsletter should connect technology to purpose.  

2. Understand and Act on Concerns and Risks  

AI in healthcare evokes legitimate fears — of inaccuracy, data sharing without consent, and the loss of human connection. These concerns are shared by both clinicians and patients. Ignoring them, or labeling skeptics as “resistant to change,” only guarantees greater resistance. 

Clinicians don’t inherently reject technology, rather they question anything that might compromise patient care. Patients are no different; they want the best outcomes possible and are protective of their privacy. These concerns are indicators of where trust must be earned, and leaders who name fears early can shape the narrative before it shapes the AI initiative. 

Hospitals must name and address these worries before they metastasize into distrust. Be transparent about what isn’t working today and show how AI tools can relieve those pain points. Create open forums for clinicians and patients to raise questions, and publish clear, honest answers. Treat skepticism as data revealing where design improvements, education, reassurance are needed most. 

Actions: Build structured channels for feedback during pilot phases and early rollouts. Make it visible that concerns are understood and lead to change. Transparency is the currency of trust. 

3. Don’t Rush: Build for Real Adoption 

The biggest mistake leaders make is treating AI implementation as a checkbox. Real transformation takes time to test, adjust, and rebuild workflows. 

It’s no different than inviting nurses, physicians and surgeons to test a new operating room layout before it is built into a new hospital. Hospitals must plan for adaptive rollout with visible iteration. Invite early adopters to become change champions by testing the technology, informing instruction and rollout, and sharing watchouts. The goal is sustainable progress. When patients and clinicians see that leadership is listening and adjusting, they engage with curiosity instead of compliance. 

Action: Budget for iteration. Measure success by improved satisfaction, reduced burnout, and visible workflow efficiency. 

The Moment Is Now 

AI has the power to give patients and clinicians back their most precious resource: time. But that future depends on decisions made today. If leaders don’t invest as deeply in building trust as they do in technology, the promise of AI will stall in the waiting room. 

It’s time for leaders to stop asking “Is the technology ready?” and start asking “Are our people ready?” 

About the authors
Veronica Van Loon / Senior Director, Corporate Reputation
Veronica is a trusted advisor to executive teams, organizations, and government agencies navigating their most difficult moments—from critical transformations to crisis response and rebuilding. With more than a decade of experience leading complex communication and change initiatives, she guides leaders through disruption to restore trust, drive sustainable change, and achieve strategic goals. She is based in Washington, DC.
Andrew Blanchette / Vice President, Data Intelligence
With a deep background in public relations and data strategy, Andrew leads ChangeMakers’ Data Intelligence function, helping clients apply metrics and insight to complex communications challenges. A trusted advisor on reputation risk and stakeholder engagement, Andrew supports organizations navigating issues response, crisis communications, and public affairs across sectors ranging from healthcare and higher education to natural resources and finance. He routinely counsels Fortune 500 companies facing global issues and brings a data-first mindset to every engagement, bridging analytics, storytelling, and strategy to drive measurable reputation impact. He is based in Halifax, Nova Scotia.

The world of healthcare is constantly changing.

Novel molecules, innovative mechanisms of action, new indications, loss of exclusivity, drug shortages, reimbursement challenges, evolving models of care… and the list goes on.

At ChangeMakers Health, we help clients navigate today’s complexities and anticipate tomorrow’s challenges — all in service of improving care and creating better lives for patients.

We partner with pharmaceutical companies, healthcare organizations and patient advocacy groups. Together, we help patients access potentially life-saving and life-changing medications and treatments. We educate patients and the public about chronic conditions and treatment options. We work to strengthen our healthcare system — ensuring people receive accurate, empowering information to support informed care with our dedicated healthcare providers.

To find out more, or engage our team, email us at:
health@thechangemakers.com

Expertise

PR & reputation management

Reputation management in healthcare is built on strong relationships. Relationships which can only be developed through years of hard work and responsibility. We have decades worth of experience to draw upon and have established strong ties with the who’s who of health media.

Key PR & reputation management services

  • Advocacy and stakeholder engagement
  • Crisis and issues management
  • Data intelligence, monitoring and newsjacking
  • Executive positioning and thought leadership
  • Influencer/content creator partnerships
  • Media relations

Marketing & advertising

Pharmaceutical marketing in Canada is complex. We know how to navigate strict regulations and how to work within the guidelines to create breakthrough work — and we’ve got PAAB and Ad Standards wins to prove it.

Key marketing & advertising services

  • Ad boards
  • Brand Strategy
  • Creative concepting, design and production
  • Digital marketing: websites, SEO/SEM, display, AR/VR, social media, CRM
  • DTC and HCP marketing campaign development
  • Medical writing

Collaborations

  • Abbvie
  • Crohns and Colitis Canada
  • CSL Behring
  • GSK
  • Johnson & Johnson Innovative Medicine
  • Takeda
There are a small number of projects in my career that I remember as the most memorable (for the right reasons). And Locked Out is one I have added to my collection. And the ChangeMakers team was a partner for that journey. Glad to know it’s also a source of pride for you too!
Paul Kilbertus

Crohn’s and Colitis Canada
Senior Manager, Communications and Public Relations

Leadership team

Meaningful change is not possible without collaboration because trust is foundational to great work. Our goal is to become an extension of your team, building a strong and lasting relationship

AutumnGehring
Autumn Gehring
VP, Client Partner
CarolineDeSilva
Caroline De Silva
SVP, Consumer
Jennifer Fox
Group Account Director
KylaBest
Kyla Best
VP, Health, Food & Trade
MichaelService
Michael Service
SVP, Healthcare Strategy
RobMcEwan
Rob McEwan
EVP & National Leader, Health

What complex challenges can we help you navigate?

Featured work

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You can’t change your field without engaging your field

The field of public engagement continues to evolve—especially in the context of complex, high stakes decision making.

For more than 25 years, the IAP2 Spectrum of Public Participation (the Spectrum) has served as the cornerstone framework for how public participation is understood, practiced, and evaluated across sectors and geographies. 

ChangeMakers has been proud to support IAP2 Canada in contributing to the global evolution of the IAP2 Spectrum by designing and hosting engagement to bring Canada’s voices, values, and practices to the table in shaping the next version of this foundational tool. 

Why We Engaged  

You can’t change your field without engaging your field.  

As engagement professionals, we are no strangers to navigating change, but we also know that change can be challenging. Engaging practitioners meaningfully on the Spectrum required opening space for reflection, conversation, and collective insight within our field. 

As a strategic partner to IAP2 Canada, ChangeMakers led the development of a national Thought Exchange survey, interviewed interest holders, and convened practitioners at the IAP2 North American Conference in Ottawa to gather insights, test language, and surface tensions about the Spectrum.  

We asked: How should the Spectrum serve our field and the public for the next 25 years? What is working well? Where is it holding us back? Does everyone see themselves reflected in the spectrum process? 

What We Learned, and What It Means 

Our engagement surfaced a wide range of perspectives on the Spectrum – some saw it as a vital tool for managing expectations and engaging effectively, while others found it limiting or felt it no longer reflects the realities of their communities. Bringing divergent viewpoints together was essential to ensuring that any changes explored reflect a breadth of needs and experiences. 

This process deepened our understanding of what is at stake. The Spectrum is more than a visual in an engagement plan—it’s a signal to the public about how their voices will be treated, and a tool for institutions to build legitimacy in their decision-making processes. That power demands accountability, adaptability, and clarity. 

What’s Next? 

When IAP2 International publishes the updated Spectrum, ChangeMakers will be among the first to renew and refine our internal approaches to align with this evolution in the practice of engagement to meet the public’s expectations, and we will help our clients do the same.  

Our call to action is: Be bold in your field. Engage with your peers to explore the possibilities of change. Be excited to innovate and push your practice while being open to hearing others’ experiences and perspectives — because that is where deep insights, great ideas, and shared solutions emerge.We’re proud to be part of a growing, global community of public engagement practitioners and to be playing a key role in advancing this important work. 

Are you reflecting on your organization’s approach to engagement and how it can be most impactful in creating or navigating change? Or are you stumped by a particularly complex project? Reach out, we’d love to chat. 

Sarah Chau Bradley  / Director, Engagement, Strategic Communications

Sarah is a communications and engagement professional with expertise in tailored consultation for diverse urban communities. She brings ten years of experience from the private, public, not-for-profit, and philanthropy sectors and strives to create spaces for engagement that are welcoming, inclusive, and culturally relevant. 

Rhianne Fiolka  / Manager, Engagement and Communications

Rhianne Fiolka is a Manager of Engagement and Communications at ChangeMakers, specializing in urban planning, equity, and accessibility-related projects. Rhianne is passionate about Equity, Diversity, and Inclusion (EDI), facilitating authentic conversations, and promoting social justice.

Chrystiane Mallaley  / SVP, Engagement

Chrystiane is a long-standing IAP2 member and leads ChangeMakers’ Indigenous, Public, and Interest Holder Engagement Services. She partners with Indigenous and non-Indigenous governments, businesses, not-for-profit organizations and communities to strengthen relationships and create meaningful engagement on complex projects and policy challenges.

AI policy

As a company dedicated to delivering excellent outcomes for clients, ChangeMakers is committed to driving innovation in our work while protecting the interests of our clients and ChangeMakers at all times.  

For our team, generative AI offers new and exciting opportunities to improve our efficiency and provide further value to our clients. Before we use generative AI technologies, ChangeMakers takes a purposeful approach to ensure we understand their impacts, risks, limitations, and benefits. As we do so, we are guided by the principles below.   

AI tools can be tremendous aids in improving productivity and driving innovation. We are curious and commit to an ongoing program of learning to drive excellence in our work and create high-quality client experiences. As the use of AI and the sophistication and regulatory environment of such products evolve daily, as an organization, we acknowledge these benefits along with the risks and limitations of such new technologies: 

  • Accountability. We remain accountable for the security, confidentiality, and proper handling of client or company information.  
  • Confidentiality and privacy. We take confidentiality seriously, and we use AI tools with this value in mind. Staff are trained about maintaining client confidentiality, including through the use of AI tools, and we use safeguards that are appropriate to the sensitivity of client or company information to protect and prevent information from being misused.  
  • Transparency. We disclose our use of AI tools in agreements or through conversations with clients, as appropriate for each engagement. We require the same of all partners and contributors. We have open conversations with our clients related to the use of AI in our work. Employees are expected to disclose to their manager and the designated project manager if AI is used to support research or content generation. 
  • Intellectual property rights (IPR). Content generated by generative AI may infringe on IPRs, and we acknowledge the copyright infringement risk. This applies to all content types, whether written, visual, audio (especially voice or music), or a combination thereof. We do not rely on an AI tool to generate “original” material and check for IPR whenever feasible/identified and mark those conditions, as appropriate.  
  • Fairness. We are aware that biases may be present in any AI tool. With this in mind, we strive to ensure the perspectives of equity-deserving communities are represented in our work – and that bias (social, cultural, or otherwise) is not further reinforced through our use of any AI tool.  
  • Accuracy. We always confirm the validity and reliability of information produced by any AI tool, specifically generative AI. Because certain AI tools pull information from the internet, accuracy can never be guaranteed and should not be represented as such. Further, we do not use AI to knowingly create deepfakes or spread misinformation.  
  • Human overlay. Our currency is our strategic and very human thinking. Given IPR, bias, and accuracy risks, we at no time produce work that is wholly AI-generated.  
  • Opt-out. We recognize that some clients may wish to restrict the use of AI tools in their projects. ChangeMakers respects this preference and provides all clients with the opportunity to opt out of AI-assisted work upon request. This option can be activated via project kickoff discussions or through a written request at any point in the engagement. 

Application and understanding of industry AI guidelines: As this is a rapidly evolving space, we adopt best practices and industry guidelines to govern how and when we use AI tools.  

We act and conduct business in good faith, and with honesty, integrity, responsibility, and the utmost regard to protecting our clients’ confidential information.  

For more information contact ai@thechangemakers.com.  

Land acknowledgement, truth and reconciliation action plan

ChangeMakers offices and team members are located across North America within the traditional, Treaty, and unceded territories of First Nations, Inuit, and Métis Peoples.